Because Brenna's temp was a little high today, they had the humidity down in her incubator, which equaled the perfect time to get some beautiful photos of her. I took a million because I want to record every single detail about her, but I won't bore you with all of them :) Here are some of my favorites...
I told her she has a little friar hairline going on :) very fashionable...
Her skin looks better every day thanks to the wonderful care they are giving her. The ridges in her skin seemed so much better today, and some of the thick skin she was born with is already starting to peel off. Once the medicine starts to work, we are hopeful it will progress even faster.
We are following the "blueprint" of the care of a little boy who was born a couple of years ago in North Carolina with Harlequin Icthyosis. The boy, who spent about four months in the NICU, is now two or three years old and doing well - we read his case study today and it gave me a lot of hope!
While I do not know you guys, I had heard of you from your pictures on Facebook. I am friends/teacher/former volleyball coach of the Allen families in A-C's district. I just wanted to say I am praying for your sweet little girl and your family. Your courage and strength are simply astonishing. Personally, I have been through a lot and reading your blog is inspiring. May God wrap his arms around all of you and give you the peace and the determination to face whatever is in store for your precious daughter. And to also be with the doctors and nurses who are caring for her and helping you all understand everything as well. MAY PEACE BE WITH YOU...you are an inspiration just by choosing to share this journey.
ReplyDeleteMerry Christmas blessings, and hopes for a healing New Year for Brenna & you all.
ReplyDeleteCourtney, what beautiful pictures of your sweet little Brenna. The changes in her skin are visible already. I'm so glad you have been receiving such great care. Thanks for sharing your experiences. We're sending prayers of strength and love to the whole family.
ReplyDeleteI love that you are sharing your family's journey. As a writer AND photographer I'm sure you have little choice. ;-) It's what you do and you do it very, very well. Sending love, light and healing from NZ to you all and especially your sweet Brenna. I'll be anxiously following her progress. Merry Christmas!
ReplyDeleteWow she is getting so much better already that is just amazing!! We will keep the prayers coming!
ReplyDeleteLooks like someone loves having her picture taken! She is such a cutie pie <3
ReplyDeleteCourtney - Bryan and I have been praying for you guys since we heard of sweet little Brenna's arrival. God has big plans and continues to be good. Praying for peace over this holiday season for you and of course praying boldly for healing for Brenna. Thanks for letting us all be a part of her special life. And as always, beautiful pictures - though these might just be some of my favorites you've taken :) -Kendahl
ReplyDeleteBeautiful, thank you so much for sharing! Praying there are many, many, many more to come!
ReplyDeleteThese are so wonderful! I am loving the friar look too Mom :) Thank you for sharing these with us. I did a little name search. One source said 'Brenna' is from Celtic (Bren) which is from the root bri, meaning STRENGTH and FORCE. Brenna has already shown off these characteristics in just one week. Go Brenna Go! We are ALL rooting for you!
ReplyDeleteThe Jennifer Allens say pray...we pray!!!! Got you hooked up with prayer chains in Northern Illinois and Missouri!! W are working as hard as we can!! Blessings to all!
ReplyDeletethank u soo much for your posts! it brings tears of relief to my yes and heart knowing that there is a chance that my 4 month old baby boy with the same disease will get better like ur angel. thank u soo much
ReplyDelete