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Tuesday, January 17, 2012

Making more strides toward home

Brenna's eyes are continuing to heal, and the skin on her newly added lids are starting to "pink up" as the blood vessels form in the new skin.

She is still stitched closed, but she is trying her hardest to open them, especially her right eye! It won't be long now until she can open them all the way I think.Some big chunks of the old skin from inside her ear have also come out, so we're hoping that means she can hear a lot better. She will be getting a newborn screening test done soon. And then when she comes home, she'll have to get regular ear cleanings to make sure the thick skin doesn't build up again in her canals.
Brenna is officially off the antibiotics she had started taking the week she was born. The only meds she is currently taking are an anti-fungal medication to prevent yeast infection, and the acetretin, which is the medication that makes her skin "shed."


She is now averaging about 85-105 mL of milk every feeding (about every three hours). One ounce is equal to 30 mL, so she's eating the amount that Connor ate at 3-4 months, if I'm remembering correctly. She's still a tiny thing though, since she burns so many calories making skin. She's staying around 6 lbs, 4 oz.


Brenna is now is 45 percent humidity level in her incubator - all the way down from the 95 percent she was in during her first week! She's tolerating the humidity decrease quite well...look how good the skin on her back looks!
And with all of this progress, we've been hearing a very welcoming word lately: HOME!


"Try to do her treatment as much as possible so you know how to do it well at home."


"These are the occupational therapy exercises you need to do with her at home."


"Bring in her baby bathtub and some sleepers so we can get her used to that before she goes home."


Are we really moving so quickly toward coming home!?!?

21 comments:

  1. Courtney, she is beautiful! So many prayers answered, and so many people in love with her!

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  2. Oh man, HOME. Gives me chills. She looks great Courtney.

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  3. God bless you all. She looks wonderful - I am so happy for you, hearing the word "home." Day at a time!

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  4. Her skin looks amazing, Courtney!! My kids always ask about her progress, and Owen (our 4 year old) reminds us to pray for her at dinner. :o) Continued prayers are being sent your way!!

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  5. Wow!!! This post brings tears to my eyes!! Her skin looks amazing and I am so happy you guys are hearing that wonderful word of "home!!" She is absolutely beautiful!!
    Prayers with you always!
    -Hailey (Watkins) Blair

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  6. YAY! HOME!!!!!!!! such great news!!!

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  7. Little precious Brenna you are amazing! Such a sweet heart. I am praying for you everyday!

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  8. Praise the Lord! She looks awesome. Praying for everything to keep going smoothly to get you guys HOME!

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  9. Praise God! Thank you Lord for answered prayer over this little girl's life! She looks amazing, even after eye surgery! So encouraged by this post knowing that God listens and is making this possibility of HOME much sooner than you thought! I think Brenna is anxious to just be home with you guys too.

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  10. Home is music to your ears,will pray for that to happen soon.

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  11. I am so happy for all of you! I have been following your blog and praying for your family! She truly is a blessing and she is blessed to have such a wonderful family!
    Marinda (Blair) Behrends

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  12. Praise God!! More Good News. It will be a blessed day of thanksgiving when you get your beautiful little girl home!!
    She's such a cutie pie to be such a fighter!
    Love and prayers
    Judy

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  13. Awesome post to read! Continued prayers coming your way! She is one amazing and beautiful little girl!
    Dana Hunt

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  14. Dear Westlake family,
    I learned about your amazing story from a friend on Facebook, and I have been captivated by your beautiful angel baby, Brenna, ever since! Thank you so much for sharing your personal journey with us. I am continuously inspired by your strength and awed by the amazing progress Brenna has been making! My family and I are keeping your sweet baby in our prayers always! God bless you!
    Tricia Turek, Petersburg, Il

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  15. She has the most beautiful profile! And.... her skin is looking great! I just want to squeeze her! Much, much love!!! and prayers.

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  16. Brenna has made remarkable improvements! "Home" is a beautiful word. Her skin on her back looks WONDERFUL! When my son was in the NICU I remember the first time I heard the nurse say the word "home" I was overcome with emotion. I am so happy for your family that Brenna continues to make amazing improvements. I'll continue to pray for even more improvements! Many blessings, Danielle Ralston

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  17. OMGoodness, she is doing so well! Step by step...one step at a time. Bless you all. Our parents are all in prayer for you, Brenna.

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  18. She has made so much progress! So happy to see such great improvements!

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  19. So happy for you and baby Brenna! God bless!

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  20. You can really see how pretty she is in these photos. Love her button nose! Her skin looks amazing, too!

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