As I wrote on Friday, she started running a fever of around 102 degrees and the high temps stuck around the whole weekend - though it came down to normal with the help of Tylenol, it would still climb back up each time the medicine wore off.
I spoke with her doctor's office this morning, and when I told them what her last two temps had been, they ordered us to the hospital. It was at this same time that I was calling Dr. Conlon's office (her dermatologist) because her skin was rapidly worsening.
On Saturday, we had noticed during her bath that Brenna's skin seemed a lot more "fragile," for lack of a better word. Typically, we can scrub her scales pretty vigorously, but with just a gentle scrubbing, we both opened up different spots on her skin that began bleeding.
Yesterday, her skin began to look a little raw, especially around the diaper area. Then by early this morning, there were little open wounds that had just appeared overnight on her face, on her head, on her torso. By the time we were admitted to the hospital, quite honestly it looked like her stomach and back had whip marks.
We are currently waiting on results of a blood culture and skin culture...but after examination from Dr. Conlon, he strongly suspects Brenna has a staph infection. And that worries the heck out of me.
Thankfully, antibiotic medication was started right away, and we're also using a topical antibiotic on her skin. I am PRAYING that we caught it early and that it hasn't spread to her blood at this point.
My little angel has been through so much already. I am asking for prayers that she keeps showing us her fighting spirit.
Want you to know I'm praying....and hoping you feel peace and rest tonight. Thinking of you daily...
ReplyDeletePraying like crazy!
ReplyDeletelots of prayers for your family & Brenna...stay strong...you're a rock, Courtney xoxo
ReplyDeleteLoving thoughts and mighty prayers, Court.
ReplyDeleteI'm so frustrated for you! But trusting in God's great healing powers. Praying for your strength and Brenna's health!
ReplyDeleteThoughts and prayers for you all and for Baby Brenna. She is such a precious little girl!
ReplyDeleteOh this makes us sad:( You guys are taken from highs to lows and poor Brenna just isn't getting a break!!! Hang in there!
ReplyDeletePete and Judy Olesen
Praying increased
ReplyDeleteOh, honey :( I'm so sorry! I'm continuously praying for this sweet girl, and thinking of the four of you, collectively, and always!
ReplyDeleteWhile I don't know you or your family, I follow your blog daily. What an amazing family you are & what a beautiful children you have. Warm, loving thoughts heading your way for darling Brenna's recovery. Always in my thoughts!
ReplyDeleteThinking of you. Praying for God's healing powers for Brenna and strength and comfort for you and Evan. Sending big hugs your way.
ReplyDeletepraying for you Brenna
ReplyDeleteI read your blog and I will pray for your family. God Bless all of you.
ReplyDeleteHave been keeping up on her progress on Facebook. U r all in my prayers- she is a very strong little girl!
ReplyDeleteYou all are in our prayers, thinking of you daily. You have a little fighter on your hands, keep on fighting Brenna!! Prayers for her to feel better fast and to go home as soon as possible :)
ReplyDeleteMy hearts aches for you, having to continue going through these scary times. Prayers haven't stopped for Brenna! Your love keeps her fighting, such an amazing, strong little girl. Xo
ReplyDeleteThinking of you all, poor baby girl, hoping and praying that this clears quickly and does not spread.
ReplyDeleteI'm really sorry Courtney. It doesn't seem fair that you have so much to cope with; most parents would be absolutely terrified by just one of the many things you and Brenna have had to go through, and yet they keep on coming, and you keep on fighting.
ReplyDeleteI really hope it's just a surface infection. Obviously on its own that's horrific, but it is manageable. Praying for a good outcome from the test results!
Sending lots of prayers of healing, hope and strength for Brenna and for all of you.
ReplyDeletePraying for a quick recovery for Brenna.
ReplyDeleteI will be praying for Baby Brenna and the family, throughout the day and night. God bless you all.
ReplyDeletePsalm 46:10 "Be still, and know that I am GOD."
We were so sad to read this post - you all have been through so much. We hope Brenna fights this infection and is feeling better soon. Stay strong. Keeping you all in our prayers.
ReplyDeleteI know the power of prayer and will add Brenna to my list and you and your husband also. God Bless!
ReplyDeletePrayers for that sweet baby girl, and your family! I hope the infection clears up soon, and she's back home where she belongs!
ReplyDeleteYour entire family is, and has been in our prayers.
ReplyDeleteBrenna's a tough little cookie, and she has a wonderful family
supporting her. HUGS!!!
The Kuzik's
Keeping you all in prayer, with love in Him . . .
ReplyDeleteWe will pray hard for Brenna! Stay strong mamma and have faith that God will heal her soon. It is so good you caught it early and got her to the doctor. God Bless!
ReplyDeleteAlthough I've never met you or your family, I pray for your daughter often. I pray for you as well. Your strength is, to say the least, amazing. When I think of Brenna, my favorite prayer comes to mind.
ReplyDeleteThe Prayer of Protection:
The light of God surrounds you.
The love of God enfolds you.
The power of God protects you.
The presence of God watches over you.
Wherever you are, God is, and all is well.
God bless. I know your unwavering strength, determination, and love can move mountains.
With love and support,
Emily
Praying for your sweet girl!! May I ask if you are at a local hospital or at Mercy (St. John's)? I am in IL, but near St. Louis. I would love to bring a meal to you or something if you at Mercy. missynicky_79@yahoo.com
ReplyDeleteSo sorry to hear your news. Poor Brenna needs a break here! I'll be praying for Brenna and your family. Hope you can get some rest.
ReplyDeleteLinda Miller
Charlotte NC
Prayers to you and your family. You all are so amazing and have touched so many people's lives with your story so know that people all over the country are praying for your little girl!
ReplyDeleteWe are praying for God's healing touch on Brenna! He hears our prayers and cares about every detail of our lives! Try to rely on His strength through this time. Much love to you and your family,
ReplyDeleteAlayna & Andrew Paoni
By the time you read this I really hope Brenna is doing much much better.Sending you hugs and prayers from Spain
ReplyDeleteShe is so precious and beautiful, prayers for a cure and full recovery from California coming your way.
ReplyDeletePraying for Brenna, and all of you.
ReplyDeleteA neighbor
Sending get well soon vibes to her. Stay strong ((hugs))
ReplyDelete(from Jolie, another ichthyosis mommy)
Praying for your precious baby girl!!
ReplyDeletePraying for Brenna!!
ReplyDeleteI am praying for your family and the doctors and nurses taking care of your sweet baby girl.
ReplyDeleteI'm praying for your precious little girl and your family.
ReplyDeleteI will keep your family and especially Brenna in my prayers.
ReplyDeletePrayers and more prayers for Lil Peanut!
ReplyDeleteThinking of you. You and youd family, and especially your little girl, are so brave.
ReplyDeleteKeeping you and your sweet baby in my prayers!
ReplyDeletePraying for your sweet baby girl, and for all of you!
ReplyDeletePraying for your sweet girl.
ReplyDeletePraying for your sweet baby girl, Brenna and your family is so strong.
ReplyDeleteNow I lay me down to sleep,
I pray the Lord, my soul to keep;
Guide and guard me through the night
and wake me with the morning's light
Amen