So many days, I marvel at Connor's nearly perfect health.
I run my fingers through his dark blond hair as I sing to him at bedtime. I take notice of the smoothness and flexibility of his skin as I play "this little piggy." I laugh at the witty and observant words that make their way out of his mouth.
When I was pregnant with Brenna, Connor and I used to pray aloud every night for the "baby in mommy's belly to grow big and strong." And of course, by that, I meant healthy.
I read an article once written by the mother of a special needs child who resented the use of the phrase "as long as it's healthy" as widely spoken by pregnant women everywhere.
I can completely understand this phrase. I am sure I used it many times myself. But most times, the words are uttered with little comprehension of the full meaning of what it means to have a healthy child. And I also understand the author's point - to say "as long as" implies that it won't be OK if your baby is not healthy.
And that's not true.
Sometimes the baby is not healthy. And life, however hard that it may be, goes on. And you will always do your best as a parent whether you have a healthy child, one who has special health needs, or an angel in heaven.
Health is never guaranteed. A heart defect discovered in utero, a skin condition at birth, autism diagnosed at age 2, cancer at 12...anything can happen.
Our child - surviving and overcoming daily obstacles due to her severe skin condition - is surely a miracle. But our other child - in complete health at this stage in his life - is such a miracle too.
When you think of all that can go wrong with a baby - between the millions of cells, genes, chromosomes and so many parts of the body - sometimes I'm amazed that so many children are born healthy.
To have a healthy child is the greatest blessing I can imagine for a parent...and one that I hope is never taken for granted.
Amen!!!! Your right on when you say, "heathly"!!!! My grandson was born with hlhs. You never dream that this could happen to "you", and it does. I love your blog and follow it religiously!!!! Praying the g tube will be your answer to weight gain as it has been for us. Brenna is a precious miracle and has touched so many people. Doing a GOOD job, mom!!!!!!
ReplyDeleteAmen, amen. With Hugs & continued prayers.
ReplyDeleteBarbara :-)
I hate when I hear people use this phrase! It's used every time you discuss if it's a boy or girl...doesn't matter as long as it's healthy. Ugh! You're right, it does imply that love or satisfaction is dependent on health, and that shouldn't be. I agree that most people don't think about it when they say it. I too am amazed that so many babies are born healthy, too. I guess that's why every child truly is a "miracle." Hope things are better in your household! I read every day!
ReplyDeleteI also was born as a child with a disabiltiy and it's always refreshing to hear, or read:), your words. They are always the words that were never said to me as a child and it a way I get my guidance from your posts and from other readers who follow you in the journey your embarking on. I wish you and your family the best of luck as the pages of your book turn on. Lots of prayers are being sent for you, your wonderful children, and your amazing husband throughout your hardships and times of joy:)
ReplyDeleteLast year I had a conversation with someone who told me their son's wife was about to have a baby. He told me that if the baby was born with a disability, he would give up his job immediately to help his son and daughter in law with the baby. This statement showed me how he recognised disability is a reality, and not something to be ashamed of. Respect.
ReplyDeleteHang in there Courtney. I'm worried about you.
Wow! Very well said!! You are a very good writer and explain every detail so perfect
ReplyDeleteYou are doing exactly what I try to do - focus on all my blessings and what is going right, rather than on what is supposedly going "wrong", as if I would even have a clue. I try to remember - there is a plan, and it isn't mine :) Take good care of yourself, and take good care of each other. Enjoy that somewhat still a baby :) boy of yours! He'll be a grown man in a flash. Prayers headed your way, everybody! Don't forget to hug each other! AND THANX FOR THE UPDATE.
ReplyDeleteWow that was said so perfectly!!! Thanks you for posting this....
ReplyDeleteBeautifully said. I am a mom to a sweet little angel, we only had her with us for 1 day. But that one day was a miracle in itself.... we continue to send positive thoughts and prayers to your family!
ReplyDeleteAMEN!!!! I do believe most of us have said this statment and now i will think twice before what I say. I always said, no matter what child God gave me, it will be loved beyond belief!
ReplyDeleteThis statement does not devalue the life of an ill or handicapped child. As a mother of a child that passed away from a genetic disorder it is important not to take such statements personally...
ReplyDeletethis hit home! thanks for always sharing your musings so open-heartedly!
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