Thursday, August 2, 2012
Thursday Thoughts, Vol. 7
1. THANK YOU for all of your incredible insight and support about our impending decision about placing a g-tube in Brenna's stomach. It has given me such a peace of mind to hear so many good experiences. I am really looking forward to the relief it will provide to our family once we learn how to use it properly. Right now all of our specialists are conferring and figuring out what kind of procedure Brenna's skin will tolerate best to place the g-tube. We will know much more in the next day or two. We may have to travel to Peoria or St. Louis to have it placed, so I'm praying that this will be as easy on our family and on Brenna as possible.
2. Yesterday we popped into Lutheran High School's day camp so that they could present us with funds that they raised for our family last week during their Penny Drive. Seeing all the kids waving to Brenna and cheering for us just about melted me. I did an impromptu Q&A session for them since I figured they would probably be curious about her...which then made me realize that I need to work on fine-tuning my explanations so that kids can easily understand! I was definitely rambling when someone asked what, exactly, is wrong with her skin. But they definitely seemed to enjoy meeting her and learning about her!
3. Along that topic, I was so impressed with the wonderful questions the children were asking about Brenna. They were thoughtful, curious and non-judgmental. They wondered if she could grow hair, if she could go swimming or go in a hot tub, if there was a cure (and their faces all fell when I said no, it just about broke my heart!), if she was "different" mentally too, if her skin hurts, and if it's contagious. I was so glad to be able to educate them about Harlequin Ichthyosis and let them know that it's OK to ask questions about it!
4. I now have more than 4,000 words written for my Blessed by Brenna book. I'm super proud of making it even this far, and I hope I can keep up the momentum!
6. Can I just say that I love watching the Olympics? I feel like a total sap too, because right alongside all of my pride for America and my intrigue about the athletes and sports/games, I get all emotional just thinking about the parents of the athletes and how proud they must be of their children!
6. Warning: TMI topic.
It's safe to say that Connor is completely potty trained (aside from diapers at night still)...except for one major part of potty training...the dreaded #2. Why is that so scary for kids? If anyone has advice on how to overcome this little challenge, I'm all ears :) We're trying to just play it cool and not make it a big deal, but he is so not interested. He will, however, tell us every time he has to pee, which I am a huge fan of.
7. Brenna's latest trick is extreme stranger anxiety. Either Evan or I have to be holding her, or at least in plain sight, or she will scream her head off. No aunts, no grandmas, nobody but mommy and daddy. I am not impressed. This will be a work in progress...
I'm so glad it's Thursday...this week has been a little trying, and Brenna isn't sleeping well and still eating mediocre at best. Hoping that things get a little easier soon...
Posted by CWestlake at 7:52 AM