Last week, Brenna's dermatologist took a culture of her skin, behind her leg, and it came back positive yesterday for E. Coli and klebsiella pneumoniae - the two bacteria that were found on her skin in mid-August. Since she's been on two rounds of two different antibiotics since then, we're trying to figure out a new game plan to kick these infections off her skin for good.
On Sunday we decided to weigh her. The puffiness due to the fluid she has been retaining after surgery has almost completely disappeared, which was reflected in her weight last week of 10.5, down quite a bit from the 11.2 she was tipping the scales at after surgery.
This weekend, Brenna dropped to 9.9 pounds. A number we hadn't seen on the scale since May 29 - more than three months ago.
That afternoon we began to fortify her milk with Pregestimil, which is high in protein. As of yesterday, each ounce is now fortified to 24 calories an ounce instead of the 20 calories milk normally is. And she seems to be handling this well, with no vomiting yesterday and a total intake of 728 - yea!
I've been able to increase the rate of her feeding pump a bit too, so for the last two days, she's not only been getting over the minimum 600 mL of milk, but it's also fortified with protein and calories. That is the high point in her health right now, and I fervently hope that her stomach continues to tolerate this feeding plan.
In the meantime, we could all really use some prayers. Brenna is not sleeping well at all - waking up crying at all hours of the night. She is miserable, losing weight and in pain. We are exhausted and feeling helpless about her conditions right now. We are seeking a lot of guidance and action from our doctors right now, and we have some big decisions to make about the course of her future treatment, as we try to make the best choices for our daughter's health.
Evan commented to me the other day that he thought I was doing the best job possible in caring for Brenna. But at this point I don't feel like it matters how good my best is when my best isn't good enough for her. It's really wearing heavy on me to see my tiny girl struggling and in pain every day.