Last week, Brenna's dermatologist took a culture of her skin, behind her leg, and it came back positive yesterday for E. Coli and klebsiella pneumoniae - the two bacteria that were found on her skin in mid-August. Since she's been on two rounds of two different antibiotics since then, we're trying to figure out a new game plan to kick these infections off her skin for good.
On Sunday we decided to weigh her. The puffiness due to the fluid she has been retaining after surgery has almost completely disappeared, which was reflected in her weight last week of 10.5, down quite a bit from the 11.2 she was tipping the scales at after surgery.
This weekend, Brenna dropped to 9.9 pounds. A number we hadn't seen on the scale since May 29 - more than three months ago.
That afternoon we began to fortify her milk with Pregestimil, which is high in protein. As of yesterday, each ounce is now fortified to 24 calories an ounce instead of the 20 calories milk normally is. And she seems to be handling this well, with no vomiting yesterday and a total intake of 728 - yea!
I've been able to increase the rate of her feeding pump a bit too, so for the last two days, she's not only been getting over the minimum 600 mL of milk, but it's also fortified with protein and calories. That is the high point in her health right now, and I fervently hope that her stomach continues to tolerate this feeding plan.
In the meantime, we could all really use some prayers. Brenna is not sleeping well at all - waking up crying at all hours of the night. She is miserable, losing weight and in pain. We are exhausted and feeling helpless about her conditions right now. We are seeking a lot of guidance and action from our doctors right now, and we have some big decisions to make about the course of her future treatment, as we try to make the best choices for our daughter's health.
Evan commented to me the other day that he thought I was doing the best job possible in caring for Brenna. But at this point I don't feel like it matters how good my best is when my best isn't good enough for her. It's really wearing heavy on me to see my tiny girl struggling and in pain every day.
It breaks my heart to hear that lil' Brenna is so miserable :( best wishes for a quick turn around with her skin infection. Please know that your best IS enough. You and your family and doctors know what is best for your little girl and are doing everything possible, no ifs ands or buts about it.
ReplyDeleteCourtney - I check your blog all the time for updates (it's on my normal "rounds" of Facebook, Pinterest, and a few other blogs I follow) and whenever there hasn't been a new post in a couple of days I worry that things are not going well. I've been keeping you all in my thoughts and in my prayers quite a bit lately. I've still never gotten to meet little Brenna in person and I very much look forward to the day that I do! I'm happy that you all have such a tight team of doctors that allows you to target a problem so quickly (as with being able to add the extra protein so quickly). I have so much faith that your family will continue fighting and making it through each and every problem that comes your way - I hope and pray constantly though that these problems will arise less and less. It's high time that the Westlake's get a little break!
ReplyDeleteI worried that no news from you was bad news. You don't know me but I have been following the blog from the first day and always keep Brenna and all of you in my prayers. Praying that God will guide the doctors, too. If you have been trying to do it all yourself during the day, maybe you should ask someone you trust to help out a little so you can get some rest. As a mother of a large family, I know it is difficult to ask for help, but sometimes you need to do just that.
ReplyDeleteyou simply being her momma is helping her more than anything, and yes you need rest as well, to be the best for her take care of yourself too. I cannot imagine how your feeling but I think of you all oftena nd pray for you all. Your doing the best you can and all you can and that my friend is amazing.
ReplyDeleteBig prayers for Brenna, you, your husband and the rest of the family. Will keep you in my thoughts.
ReplyDeleteI recently just read all of the past blogs. I have to say you are an awesome mom! It is amazing what we can do with God's help. I have to be honest, I cry a lot while I read your posts. It isn't fair for a baby to have to endure this. I just had a little girl in June. When I see pictures of Brenna, she reminds me of my Zoey. They have such bright eyes and chubby cheeks! I'm a bit jealous because Zoey won't leave the cute hats and bows on ;). Just remember God only gives us what we can handle. He has a plan for us all.
ReplyDeleteHave you tried a zeolite for detoxification? It's a mineral, natural... My thoughts and prayers are with you all. The Reich Family - NC
ReplyDeleteOh dear God. http://www.herbological.com/herblog/?p=20 Zeolite detox is linked to mesothelioma. And you want to offer this to a 10 pound infant with other health problems? Really?
DeleteCourtney and Evan, my thoughts are with you as you pull her over the latest hurdle. You are amazing parents and Brenna is an amazing girl. Just keep swimming!
I can empathize with the feeling of helplessness with being up all night with a baby in pain on a much, much smaller level as I had a child who was very colicky for 9 months and had intestinal issues. While this was absolutely nowhere near what you are currently going through, I can only hope that the doctors find a way to help her little body fight infection AND relieve the pain she is experiencing. You have a beautiful, amazing story of faith and hope. Please continue to share it... With much prayer and encouragement from one Mom to another.
ReplyDeleteCourtney, you and your family are doing such a good job, but I know it is the most frustrating thing when there are no answers and you only get more and more complications. You are not alone as you struggle with all of this, God, your family, and all of us are pulling for you. the doctors, and Brenna.
ReplyDeletePrayers go with you all.
I've known about Brenna since she was born through my high school friends who still live in Springfield. I became a FB friend last week and only today read this blog and saw the pictures. You now have people in Kansas City praying for you as a mother and for your little girl who is in pain. We will include you all in our daily prayers. As a mother of three, I know there are days when you feel your best is not good enough. God doesn't ask any of us to be perfect, but just serve Him by serving others, including little Brenna. May tonight be a more peaceful sleep for you all!
ReplyDeleteYou and Evan are such AMAZING parents! I can not even imagine your day to day, but Brenna and Connor are more than lucky to have you two as parents. I keep Brenna in my prayers everyday and hate to hear that she is in pain :( but she is a fighter and she will overcome this just as she has everything else.
ReplyDeleteGod bless you both!
My heart goes out to you and your beautiful daughter. We all know you are doing your best, please don't ever think you are not.
ReplyDeleteBig prayers going to you and your family. Have faith.
ReplyDeletePoor Brenna girl. Big prayers coming your way and prayers for her doctors that they are blessed with the wisdom to advise you on the best course of action. Hugs!
ReplyDeleteYou are doing an awesome job, Mama! Hang in there. You know what's best for your little one, and no one can care for her like her mommy and daddy. Praying for you all.
ReplyDeletePraying for you. Praying for healing, strength, rest, patience, and peace. A LOT of people are praying and standing by to help. You are going to get through this!
ReplyDeleteBrenna is a strong baby.. everything 'll be ok... could happen an infection like this.. don't worry too much.. La Lisa
ReplyDeleteYou and Evan are doing a GREAT job in caring for not only 1 child but also another child who is a toddler and needing TONS of attention. I am praying for your family daily and I hope the doctors give you all some answers or news that will help Brenna stay pain free. I am sure it's exhausting for all of you, but try to keep your head up and know that there are many many people praying for all of you. I know as a parent, we would want to take the pain and discomfort away from our children any day and it's so hard to see them like that. I pray that she is painfree, and comfortable so very soon. I also pray that you all get some rest, as I am sure it's wearing on each and every one of you. God Bless you all.
ReplyDeleteI have quietly followed your blog since the birth of your beautiful daughter, Brenna. I have laughed and cried with you along the way. The grace and strength you demonstrate are truly an inspiration. I have offered many silent prayers for baby Brenna and your family along the way. Today, I want to share with you what I've learned from your blog. Brenna's Mommy is loving, caring, big-hearted, kind, fun, understanding, unselfish, giving, nurturing, attentive, thoughtful, patient, generous, hardworking, considerate, intelligent, creative, affectionate, warm, inspiring, dependable, inspiring, positive, loyal, wise, sympathetic, honest and a role model to many. I hope you can draw strength from the knowledge that you have had such a positive impact on the lives of many. Please take comfort knowing that you are all in our thoughts and prayers. Brenna is loved by so many. Kaylee G.
ReplyDeletePrayers to breanna and your family! God works in mysterious ways and only gives you what you can handle! Hang in there and remember no matter what you think you are doing your very best! You can't help what is happening no more than you can control the weather! Just being there for that precious little princess and taking care of her is what is best!!! God bless you!
ReplyDeleteWow I will send prayers ur way this just melts my heart may god bless u all
ReplyDeleteIsabelle and Ireland are praying for you every night. I can't begin to imagine how you must feel. Hugs!
ReplyDeleteAhh...this breaks my heart! This blog has become a several times a week thing for me and although I don't know you - I often think and pray for your family and little Brenna. Soo glad to hear that she is eating better - that's great! So sorry for her skin - and her discomfort. You are doing an amazing thing for your little girl and although you think that you are falling short because you are not easing her pain, you are doing all that you can do! You are a role model for all moms who read this - your love and patience for your little girl, your positiveness (even when you probably don't think you are at times), your selfless giving of all that you can to help Brenna and keep her comfortable. I pray that the doctors find a solution SOON to this skin problem.
ReplyDeleteBrenna is such a special girl. Her strength is an example for us all. I will continue to pray for that sweet baby girl but I must say she couldn't be more blessed having parents like you!!!!
ReplyDeleteMy thoughts and prayers go out to you all and little Breanna. I pray that you have the strength to keep on being an amazing mother to your beautiful little girl.
ReplyDeleteWill keep your beautiful family and caregivers in my thoughts and prayers. Will put Brenna's name on our prayer list at church.
ReplyDeleteGer well soon Brenna - you seem in so much pain. I hope you're smiling again.
ReplyDeleteCourtney and Evsn - you do a great job in sharing your experiences and info re Ichthyosis. Just a word of warning though - be careful what photos you post. My photo was used on an inappropriate voyeur website discussing interesting medical conditions amd disfigurements this week, I blogged about it. I'd hate for the beautiful gorl's photo to be misused too.
Love to you all.
And to reiterate - you and Evan are great parents. I understand it may be frustrating but please don't sell yourself short. Brennan's pain is not related to your parenting skills, it's genetic. Again, my thoughts are with you. And apologies for the typo - gorl
ReplyDeleteIt goes without saying that you are both amazing and wonderful parents. Here is the only advice I can offer you, as I have done the same for my own children. Your doctors are wonderful and amazing, but no one can know everything. Is there another doctor who specializes in this at Hopkins, or in Boston, or at Mayo or anywhere where you can get a second, third, or fourth opinion. I would gather all her medical records and send them to several doctors, just to see what their thoughts are. Sometimes a fresh pair of eyes can see something in a whole new way. It took me 8 months and 12 doctors to get a complete diagnosis and the right treatment for my son. Without that 12th doctor at the Mayo Clinic, he would not have gotten better. And if you need to get on a plane, which we did, then find some way to do it. Your instincts are the best medical test for Brenna. Trust yourself.
ReplyDeleteBrenna is a fighter and I'm sure she knows you do everything in her best interest. We continue to keep you in our thoughts in NJ! Stay strong, Brenna!
ReplyDeleteI am simply a friend of a friend who has been praying for your whole family since I first learned of your journey. Please know that my prayers and my positive thoughts continue. Sincerely, Janis Williams
ReplyDeleteI will pray for Brenna and your family as the doctors and you and Evan as you have to make choices that some of us have never had to make, especially in our childrens healthcare. I can not imagine the heartache you go through taking care of Brenna through her pain. Just know that you are doing a great job being that angels mommy. I dare to say that she is ine of Gods angels as well. HE will determine Brenna's course and guide her wonderful parents and doctors. Just make sure to take care of yourself and ask for help even if its 10 minutes. And, please, spend as much time with Connor as posslble. I pray for him as well. I am sure he is a little afraid that his baby sister isnt doing so well right now andhis mommy and daddy dont have as much time and/or energy like they used to do. Courtney, you are doing your best because you are there for Brenna but dont let it totally drain you. As I mentioned above, ask for help more as you need it, even if you dont feel like you want tobe away from Brenna. I urge you to have a trusted friend or family member watch over Brenna for even an hour. Then you take Connor on a walk orspend some time with Evan. I think it will rejuvenate you a little to go back and be the best mommy you ALREADY are. God bless you all.
ReplyDeleteI have to grab my rosary and carry it with me sometimes just for some relief. I am saying rosaries for Brenna and for the Westlake family every day. I don't know what else I can do ;) God bless you all, and I'm praying for Baby Brenna to be more comfortable and for endurance for your entire family. Thank you for writing, Courtney.
ReplyDeleteHave the doctors ever done stool samples on Brenna? My 5 year old daughter just got diagnosed with Clostridium difficile (C. diff for short). It is actually caused by certain antibiotics (which she was on for an infection). It was Cleocin, or clindamycin, that caused it for her. So her stomach was very irritated, she wasn't as interested in eating, she lost some weight, etc. I just wanted to offer the suggestion of seeing if they would do some stool samples on her JUST IN CASE there is some bacteria going on in her tummy??? My daughter didn't have any of the normal symptoms of C. difficile, and I was shocked when her cultures came back positive.
ReplyDeleteAlso, I was wondering why they don't hospitalize Brenna and do IV antibiotics for the skin infections? I'm sure there is a reason, and I hope I haven't overlooked reading the reason in previous posts. I just know that usually when something won't resolve outpatient, IV antibiotics do the trick.
I just hate so much to know that your baby girl is suffering and hurting so much! :( I'm so very sorry for her pain, and for your all's pain in having to know she is hurting.
Love to you all.
ReplyDeleteHi Courtney,
ReplyDeleteI am Lindseys sister n law Jill, I wanted to let you know of a breast milk fortifier made not of Cows milk it is called Prolacta, it is based off of human milk only that may help. My thoughts and prayers are with you all...also I want to tell you to follow your mothers intuition it is far more powerful than you think. Also I do not know if Brenna has had any vaccinations but if she has you may want to look into reactions and such, they can affect digestion also, just a thought. Be strong for her, I know how hard it is to look at your baby and feel that you are not doing enough, just arm yourself with knowledge, the best doctors and follow your mothers intuition. That got me thru with my own daughter. I will be thinking of you....
I do not know your family but my heart hurts for you all. I can't imagine the pain you go through daily knowing you're limited in what you can do to help your baby. I do not have children yet but couldn't imagine not being able to hold or cuddle them to make them feel better. Knowing that your baby is in so much physical pain just brings tears to my eyes, it absolutely breaks my heart for her. I pray that God lays his healing hand on her and works a miracle to help your precious baby. I also pray that God gives you the strength as her parents to deal with struggles you face daily due to her condition. Many prayers from a stranger in Loganville, Ga!
ReplyDeleteMy heart hurts so much for sweet Brenna. Praying for a quick recovery and for feeding to continue to get better.
ReplyDeletePraying for you and your sweet little girl, I can't even imagine what it is like to watch her suffer and feel so helpless in the face of it all. May God rain down His mercy on you and your family. You are such an amazing mom, I stand in awe of your courage and strength even when it doesn't feel like you are. How precious she is...
ReplyDeleteThis poor, sweet baby girl. Courtney, you are beyond belief in your role as Brenna's mom. You and Evan are her rocks of support. I feel as though the doctors here are learning as they go, right along with you. Our prayers will certainly include all of you, asking God to relieve your suffering.
ReplyDeleteI'll be praying for you guys.
ReplyDeleteSending additional prayers to Brenna and your family. May God wrap his loving arms around you all.
ReplyDeleteI understand your pain. This is such a special little girl who has had to go through so much already. My little girl, Jemima, has KID and we went through many skin infections when she was a baby too (though Brenna's is more severe.) I don't know if this will help, but I know that as well as antibiotics, I tried many other things during these infections and some things were lifesavers. Medihoney on skin infections is incredible, as well as colloidal silver in her bath. Both are very safe and I found helped enormously on Jemima's very delicate ichthyotic skin. Love and thoughts are with you, and its true, you are the best parents for this extraordinary child. She is a blessing to you and the world.
ReplyDeleteEvery post I am in awe of your strength! Brenna is a beautiful girl with the best parents in the world. A day does not go by that I do not say a prayer for all of you to be strong. You have been an inspiration to me of true faith and love. Thank you for sharing your story! God bless you each day!!
ReplyDeleteMy family are praying for little Brenna. She is a Brave little thing xo
ReplyDeleteMy family are praying for little Brenna. She is a Brave little thing xo
ReplyDeleteMy family are praying for little Brenna. She is a Brave little thing xo
ReplyDeleteI agree with Rachel above about the silver & Norwex makes baby wash clothes that have micro silver infused in the fibers. Norwex antibac cloths have been proven to take care of staph, strep & MRSA germs & the baby cloths are super soft.
ReplyDeletePraying for your sweet little Brenna!
ReplyDeletePraying for you all during this time. May our Blessed Lord and Savior keep your hearts and minds clear as you continue to care for each other, Brenna & Connor.
ReplyDeleteWith Hugs,
Barbara Lyman :-)
Marysville, WA
I can't begin to imagine what you and Brenna are going through. But whenever you feel down, or that you aren't doing enough, remember this: God chose you to be Brenna's parents. And the reason He did this, was because NO ONE else on earth could be as good of parents to her as you. He knew this. He trusts YOU with this special little girl.
ReplyDeleteKeeping you in our prayers.
Praying for your sweet little Brenna and your family. You are such a wonderful Mommy & she's so lucky to have you! Hoping all your new feeding plans will help her get stronger & gain some weight & ease her pain. Stay strong!
ReplyDeleteI had the pleasure of meeting your beautiful family last spring at TC. It breaks my heart to see you all have to go though this. She was doing well at the time and i remember just being in awe of how much strength and faith. I could feel radiating from you Evan and your little fella! Now more then ever i can hear your love in your words. You want nothing more then any mommy wants for their child. God gave you Brenna and he's not supposed to give you not then you can handle so...you WILL find an answer...someway...somehow... Praying for her pain to be relieved and your soul to be renewed. You can get through this momma!
ReplyDeleteso sorry for all of her discomfort and your weariness. May God help u all to make wise decision!!
ReplyDeletePrayers going up
ReplyDeleteMay you feel the prayers of so many who are on this journey with you. I'm sure some days you feel as though you walk alone, but be assured there are those of us out here who have never met you or Brenna, but we are lifting you in prayer. God Bless You All!
ReplyDeleteKaren Meehan
Hebrews 13:8 "Jesus is the same yesterday, today and forever." When it's all beyond our control, when nothing else seems true, this may be the only thing to cling to. He is the same. Praying for peace and rest for all of you!! "The Lord your God is with you, He is mighty to save. He will take great delight in you, He will quiet you with His love, He will rejoice over you with singing." Zephaniah 3:17
ReplyDeletePrayers from central Illinois. Beautiful baby.
ReplyDeletePraying so hard for the doctors and your whole family...
ReplyDeletePraying for you and your your sweet baby B. Your doing a remarkable job. I am a use to be peds nurse and amazed at the care you give your baby girl. BIG prayers for you and don't doubt yourself!
ReplyDeleteI have not been on here in a while. I am so sorry to hear that you are all having such a hard time. I will continue to pray for your sweet girl and the rest of your family. I know you feel helpless but you are really amazing! Don't forget that! God bless!
ReplyDeleteI was silently thankful and joyful when Brenna came out to this world. Although I know the heart wrenching stages that the parents would go through during her life journey, I see happy and loving parents that she has. To see her like this is just heart breaking, my heart cries out for her and the family. From our home in the Philippines to yours, may our prayer of healing reach you and touch Little Brenna that her condition gets better and that the pain will go away. God is good all the time and let us keep the faith. We will be with you in prayer. Godbless.
ReplyDeleteI follow your blog everyday, and I worry when there are no posts . I just wanted you to know that your family is in my thoughts and prayers everyday.
ReplyDeletePrayers for you and Brenna. epi
ReplyDeleteMy heart goes out to you and your family. I pray for you everyday. Brenna is blessed to have such a wonderful mother. I too worry when here are no posts and when there are I wonder how you have the time or energy to update us all. You are an inspiration. God Bless.
ReplyDeletePrayers from Southern Illinois
A prayer for all of you.....
ReplyDeleteWe are continuing our prayers for you, Evan, Brenna, and Connor. They always say God doesn't give you anymore than you can handle but I know you are feeling like you are hanging on to a fraying rope. You are AWESOME parents and Brenna knows that. I continue to use your blog as my daily devotional sometimes going back and ready some of your older blogs. You are an inspiration to any young family struggling with a child who has special needs as Brenna does. Some day you can joke with her about how she has always been high maintenance and you love her to the moon and back. God bless you all. Jeff and Vicky Keever
ReplyDeletePraying and thinking of Brenna and your family. You are doing an amazing job caring for her. God Bless all of your family!
ReplyDeleteso sorry about your recent problems. I am praying for all of you right now and know that you are a fantastic mother!!!!!
ReplyDeleteI have never met you, but check your blog daily. I think about your family and pray for you each and every day. Brenna is VERY VERY lucky to have been born into such a great family. You are doing an amazing job!!
ReplyDeletePraying hard for your family and praying you guys find answers and get some relief asap!
ReplyDeleteCourtney,
ReplyDeleteI've followed your blog since Day 1 and think you have been doing an awesome job with Brenna, Connor, and Evan. You have managed to be a great mother and wife for your family. God's work of knitting you all together shows through your daily expression of care, concern, and love for each member of your family and yourself. Sometimes things occur in life that we can't control and during that time we must leave them at God's feet to take care of. He truly will not put more on you then you can bare. You may get frustrated and annoyed, but your human and allowed to have human responses. Have faith in God that he will reveal his plan to you for Brenna and her feeding, skin infections, and any other things that may come up. It's a long journey and Brenna is very fortunate to have this family, because all I can see is love for her. Keep up the great work you've been doing.
We've never met but I saw a link to your blog from Melanie Bradley's Facebook page. I'm 40 years old and have Lamellar Ichthyosis over 100% of my exterior. Dermatological and pediatric medicine have made great strides since I was Brenna's age. Time, love, and lots of moisturizer are all a good thing.
ReplyDeleteAs I've aged, I've moved towards making my own moisturizers, which do me more good than anything I can purchase with or without a prescription. I'd be happy to share the recipes with you if you'd like. They involve shea butter which has vitamin E & F and raw cocoa butter. I just got over Shingles and a minor Staph infection and I think my moisturizer had a lot to do with keeping me comfortable and healing faster than any of us expected.
Sending prayers - lots of prayers!
ReplyDeletePraying
ReplyDeleteLoving you and putting it in my phone to pray hourly!!! Come on Lord!! Miracle for healing and strength to endure needed!
DeleteI know this was mentioned in previous posts but as a parent of a child with a rare disorder I really think you should highly consider taking Brenna to see a specialist in HI even if that means traveling. There are bigger academic institutions than SIU who have major research interests in looking for ways to treat Brenna's skin infections. Regionally, there is Northwestern Children's hospital in Chicago and Mayo Clinic. Specific to HI, I thought their was a Dr. at Duke or NC that does a lot of research on it. At the very least, it is probably imparative that your local doctors are consulting with nationally recognized drs. in the field. Not to knock Springfield/ SUI as they have been amazing so far in treating you daughter but her condition is so rare that it may need to be addressed by a bigger institution that deals with kids with rare diseases. This is important not only because her life is at stake but because her failure to grow, feeding issues etc. right now could cause developmental issues later in life. We have traveled out of state for our child's rare disease and although hard we feel confident that our child is getting the best care. God bless you and prayers with your family as you figure this out.
ReplyDeleteWith technology that is now available... I am sure that Brenna's doctors are getting input for all over the world.
ReplyDeleteYou have a beautiful family and are a wonderful mother with amazing strength. There are many of us praying for strength and healing for brenna. May God keep you all strong of heart.
ReplyDeleteMany prayers and positive thoughts are coming your way! You ARE a wonderful mother and a true testament of love and strength! God bless you and your family..esp little Brenna!!
ReplyDeleteSince her skin disorder is genetic it can not be cured. I am sure the main concern is to make sure she has the caloric intake to keep her little body functioning. Her skin is using up so many calories to grow that there aren't that many left over for her to thrive.
ReplyDeletePraying.
ReplyDeletePraying for strength for you and Brenna. Praying also for your medical team to provide guidance and answers even if that means you need to seek care for Brenna elsewhere. Praying for your intuition and prayers to guide you in choosing the right care for Brenna whether that is a medical or alternative treatment. Brenna is blessed to have such loving and dedicated parents.
ReplyDeleteSending lots of prayers to your family.Hang in there.-Bridget West
ReplyDeleteAs a young mom myself who is your age, I am in constant Awe of your strength and your ability to be so open and honest with your blog. You and your husband truly are amazing parents and I am sending lots of prayers your way in hopes that Brenna will begin to feel better ASAP :)
ReplyDeleteI will offer up my adoration hour for Brenna and all of you tonight.
ReplyDeleteMay a host of prayers rise up to sustain all of you. Words seem so inadequate in light of what you are facing daily, but our prayers are earnest and heartfelt. We all wish we could somehow form a cocoon to protect sweet Brenna from any more pain, so let our thoughts and prayers envelope you with strength, hope and grace. Stay strong!
ReplyDeleteYou have more prayers than you know..healing and comfort for Brenna; strength, rest and answers for you and Evan.
ReplyDeleteLending my had to squeeze...
ReplyDeleteI check your blog daily and I too was worried when a few days went by without words. You are a wonderful mother who has touched more peoples lives than you know. You have helped strengthen my relationship with the lord and i thank u for that. My prayers have become more frequent as I pray for you, your family and your wonderful baby Brenna!!
ReplyDeleteMy heart is breaking for you all. I can't imagine what you are going through!! Our prayers are with you.
ReplyDeleteJudy
Praying for your family!
ReplyDeleteYour family and your sweet little girl are in my thoughts and prayers. I cannot imagine what you are going through. My son actually was discharged from St John's NICU just a week before Breanna was born and I know how that in an of itself is such a heart-breaking challenge. May Jesus put his healing hands on your sweet baby girl. You are doing an amazing job. God Bless you all.
ReplyDeletePraying for Sweet little Brenna..... God Bless :)
ReplyDeleteMy heart is with you as are my prayers....a sticky note has been on my computer since hearing of precious Brenna at Dr. Boyer's office. I had not checked in for awhile, and felt pulled to do so this morning. I will be agreeing with God's word for her to be healed, a miracle would do! I agree with others....you are doing an amazing job. You are over comers!
ReplyDelete